AL AMYLOIDOSIS AWARENESS WEBSITE
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Patients diagnosed with AL amyloidosis have a wide range of experiences. Examine this hypothetical journey of 1 patient, and then see the potential impact improved awareness and
MEET DAN, 68 years of age, Type 2 diabetes mellitus, Obesity, BMI 30 Kg/m2, Hypertension, well controlled and with reduction of antihypertensive médication in last 12 months, Hyperlipidemia, detected recently with increased levels of Triglycerides (5 mmol/liter) and treated with lifestyle modifications, recently offered a medication treatment but patient declined
Now consider what could potentially be achieved with improved awareness and collaboration among specialists
AL amyloidosis patients can present with an array of vague symptoms, making it hard to properly diagnose. Over the course of diagnosing this disease, specialists need to be aware of the full constellation of symptoms and look at the patient holistically, and collaborate with other specialties involved to avoid potential misdiagnosis or delayed diagnosis. Broader awareness and greater cross-disciplinary collaboration can help lead to earlier diagnosis and impact the outcomes associated with the disease.